Funded Research
Sara's Cure
Clear Cell Sarcoma Project Update | July 2019
Clear Cell Sarcoma Project Update | January 2020
Clear Cell Sarcoma Project Update | September 2019
Our Top Funding Opportunities
With the onset of the pandemic, our fundraising which was based on in-person activities came to a screeching halt. Previous to that, we were running up against the wall with the effort involved and the amount of money we were raising versus the number of projects we were able to fund. We have a clear vision of the next steps necessary to make a difference in CCS, and are very motivated to accomplish these goals.
Tissue collection and repurposed drug testing
The most pressing issue is identification of a beneficial treatment for Clear Cell Sarcoma. In this regard we are funding an organization that collects our patient tissue from biopsy or surgery and sends it to The Broad Institute of MIT and Harvard where they will grow cell and mouse models for repurposed drug testing. Since 2017 we have raised $202,000 for Repurposed Drug Testing and we need another $350,000 to complete the repurposed drug testing project over the next 2 years. This will not only benefit Clear Cell Sarcoma patients, but it will benefit all Sarcoma patients for years to come.
Patient Registry
A Patient Registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure and that serves predetermined scientific, clinical, or policy purpose(s). We at Sara’s Cure have officially initiated our patient registry in January, 2020. NORD (National Organization for Rare Disorders) owns the registry platform. We are also in partnership with NORD establishing a first-ever national history study.
Single Cell Sequencing of CCS
Support Our Trial
A small pharmaceutical company in New Jersey is diligently working with the FDA on our behalf to start a first-ever Clear Cell Sarcoma combination drug trial. This collaboration was patient initiated and is patient driven. Sara’s Cure has been asked to help with the travel portion of this trial. Will you help a family by supporting travel expenses to a treatment?
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