For Physicians
Sara’s Cure is committed to helping bring together physicians knowledgeable about CCS. We want to partner with physicians to offer support and connection with other physicians as well as CCS patients. Since CCS is ultra-rare, it is difficult to access up-to-date information quickly. CCS patients and caregivers have participated in FDA listening sessions, Focus Groups and Industry webinars. CCS is our main focus so please reach out to us, we are here for you.
Clinical Trials
Here are the Clinical Trials currently focused on Clear Cell Sarcoma.
Publications
Publications helpful in understanding Clear Cell Sarcoma.
CCS 101
A brief summary of current CCS information.
Sara’s Cure
How We Got Started
Sara’s story begins on a mission trip to rural Guatemala, where she began experiencing an excruciating stomach pain that local doctors could not treat. After a middle-of-the-night emergency ride on grueling back roads through areas known for drug trafficking and extortion or worse. Sara and her mother made it to the hospital in Guatemala City. Sara underwent immediate surgery to remove a malignant tumor from her intestines.
Where We Are Now
Sara’s Cure is working towards being the #1 Clear Cell Sarcoma advocacy and research organization in the world.
Patient Registry Info
Learn about our patient registry.
“We are forever in your debt. Without Physicians, Doctors and Scientists at the forefront of Clear Cell Sarcoma, we would not be on track to finding a cure” – Lennie Woods
