If you have found your way to this section of our site it’s either because you have just recently been diagnosed with Clear Cell Sarcoma or have a loved one who has been. Hearing the words,”You have Clear Cell Sarcoma”, can be frightening and life-altering. One of the patients that we connected with recently said, “I felt like I was alone on an island until I found Sara’s Cure.”
Although we did not start our organization to get involved in patient advacocy, the rarity of this disease had us quickly realizing that it was a necessity. Patients with Clear Cell Sarcoma are often misdiagnosed and many times this can have a fatal outcome. We have put research and drug development along with patient education at the forefront of our mission.
In this section, you will find:
- A letter from the Executive Director – Lennie Woods
- Definitions of common terms
- Frequently asked questions
- Facts and Statistics